Ask me anything

 This post is for you guys to ask anything about my journey so far. No holds barred ask me anything and I will give you an honest truthful answer no bull. No question to small or too silly. You can go anonymous if that makes you feel better. We are in this together. Stop the sigma of losing hair. We should not be ashamed xxxx

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Alopecia

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The worst news

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  I want to cry right now.  2 days ago I found a 10p sized bald patch on the left side of my head. Today it’s the size of at least a 50p. What’s weird is where has that part of my tattoo gone?     Devastated does not come close to how I am feeling right now. I was so hopeful and I am worried this is it for me again. I was doing so well and I have been so happy having hair, I know the top hasn’t grown the way I want but I can live with that. It sounds silly but having a ponytail has been so exciting for me as it’s a dream come true for me. However the bald patch today had sent me in a spiral as all I can think about is how it used to be. I am trying to tell myself that unlike before I am not losing clumps of hair but I don’t know if I can cope with losing all my hair again. I had a dream and scared that this is been taken away by the evil that is alopecia. I fu**ing hate this. I am so ashamed to post this but when I started this blog I promised I would be honest and I...
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Is this for life?

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I have been getting a lot of questions about Litfulo and how long you need to be on it. As far as I know from the specialists and the research I have done it seems to be a medication you take for life. A few people have taken it and stopped and within weeks they have gone back to been bald or having significant hair loss again. I can only speak for myself when I say this medication has been a miracle for me, having hair again is helping my confidence return and I have had zero side effects. Don’t get me wrong it’s scary but the only thing I am scared of is been taken off the tablets. I honestly don’t think I could cope if that was to happen. Despite been on Litfulo I still constantly check for shredding and touch wood, so far, nothing but every day is a battle of hope and despair. This medication has been a dream come true for me. I just hope and prey I will continue the way I am. God bless to you all, reach out if you need me.   Dare to dream xxxx
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